It seems like every time I get down or frustrated with challenges in my own life, my clients seem to send me on assignments that provide perspective. These assignments show me something special, introduce me to people who inspire me by how they meet much more difficult challenges.
Last year, that happened twice, with the same family.
Two boys, Miles and Caleb Lefebvre were both born with spina bifida. If you're not familiar, it's a disability caused by a spinal chord that didn't develop normally in the womb. Fortunately, both boys were born into a family that fights for their kiddos, tooth and nail. When the family was figuring out what sorts of equipment and services they needed, they also figured out what kind of support was available, to keep the kids happy and healthy and at home where they could be showered with the love of their family.
|Dad time with Miles.|
I met the Lefebvres one March morning to film the family in their morning routine and then to sit down with mom, Allison, for an interview that would be come a part for the Arizona Center for Law in the Public Interest's fundraising video.
While fighting for her children, Allison Lefebvre sought legal help from ACLPI to overcome the frequent roadblocks to compel the responsible government agency to fulfill its obligations, and to stop denying services.
Allison's compelling interview became part of a larger video explaining how ACLPI makes a difference in our community overall, while protecting specific clients such as the Lefebvres.
|A little love for Karen, the writer/publisher of RAK|
|A little help.|
As Miles cuddled with his mom, he started to have some breathing issues. One of Miles' devices told Allison that he needed some help. She began using an ambu bag to help the little boy breathe while the nurse set up an oxygen tank and connected it to his throat tube to resolve the issue. After a few minutes Miles was back to breathing normally. Later, Allison explained to me what had happened and that this is common event.
That would explain why she was so calm during the entire event and why I had almost no idea that something concerning was unfolding in front of my lens.
For a visitor it was startling.
For the family, it's normal.
Later that day Miles was sitting in the living room with his brothers, happily coloring and drawing pictures with crayons and markers.
Back to Normal.
|Hey, while your checking on my vitals, could you tickle me?|
|When Allison needs a little encouragement....|
|some much needed gear.|
|Caleb, Fast cars|
|Love and medical gear, a normal day.|
|Hey mom, lets play!|
|Hugging up Weston, Allison tries to make sure the love is balanced among all three boys.|